The Face of Hope

Jen Karnan  

It's a rare thing to witness scientific progress firsthand; to see the tangible result of years of research, testing, trial and error, and long hours spent in an effort to solve a problem. To look into the eyes of three year old Sofia Wylie is that rare occasion, as her young life is the direct, miraculous result of the first ever treatment developed for Spinal Muscular Atrophy (SMA).

For those who remember the Ice Bucket Challenge from a few years ago, that widespread fundraising effort was to fund research for a cure of Amyotrophic Lateral Sclerosis (ALS). SMA is a terminal childhood version of that disease that takes hold right from …